tag:blogger.com,1999:blog-1976128754487941498.post5891217959310106241..comments2022-12-10T04:20:04.682-05:00Comments on The MSadventures of Ms. CrankyPants: How Do You Say "Diaper" in Italian?Ms. CrankyPantshttp://www.blogger.com/profile/13639705108258882767noreply@blogger.comBlogger17125tag:blogger.com,1999:blog-1976128754487941498.post-3858860571814889892013-04-05T15:34:31.858-04:002013-04-05T15:34:31.858-04:00Well I'm always happy to over-share...
I didn...Well I'm always happy to over-share...<br /><br />I didn't have to use the phrase - last time we went Italy was a few years ago so I was probably in the "Denial" stage. Next time maybe? I think MS is less common the closer you are to the equator - which is why I find it strange that the top Neuros in Nottingham are all Greek. <br /><br />Ah beautiful Venice! That's where we got married. stevedominohttps://www.blogger.com/profile/08598042606017502408noreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-36620583370137304792013-04-05T14:14:35.187-04:002013-04-05T14:14:35.187-04:00Steve,
You're welcome any time! Thanks for t...Steve, <br /><br />You're welcome any time! Thanks for the comment on the medication, as well as the, er, products.<br /><br />We're going to Venice, Florence, and Positano. I've already figured out how to ask for the bathroom; good to know how to say I have MS. Did you get puzzled looks? I don't think it's so common there, but I may be wrong. Ms. CrankyPantshttps://www.blogger.com/profile/13639705108258882767noreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-15679404547676548542013-04-05T08:34:19.150-04:002013-04-05T08:34:19.150-04:00sorry to come to this party late.
I have also tak...sorry to come to this party late.<br /><br />I have also taken oxybutynin which really did help me out - major dry-mouth but otherwise fine.<br /><br />i've also got some pads which i use when going on long journeys - never 'had to use them' (if you follow me) but the extra bit of confidence they give me makes life easier for myself and those around me. i admit, as a man, it's kind of easier for me to unload in public - not necessarily the best solution but an option in desperate times.<br /><br />where in italy are you going? i've seen some truly horrific public toilets there but any port in a storm - i also learnt the italian for "I have Multiple Sclerosis" (ho la sclerosi multipla) - but hey, there's even a McDonalds in Venice!stevedominohttps://www.blogger.com/profile/08598042606017502408noreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-27853860667947174122013-04-03T17:29:12.859-04:002013-04-03T17:29:12.859-04:00Good point! I just need to write everything down b...Good point! I just need to write everything down before calling; sometimes, I get flustered when I call (maybe it's shock that someone answered?) and forget the 12 other things I wanted to ask. Ms. CrankyPantshttps://www.blogger.com/profile/13639705108258882767noreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-81323843882867249232013-04-03T13:36:57.044-04:002013-04-03T13:36:57.044-04:00I don't see why not? They're not like nerv...I don't see why not? They're not like nerve-pain drugs - you don't need to build them up or anything.Definitely one for the neuro, if you ever get hold of them!<br />XStumbling In Flatshttp://www.stumblinginflats.comnoreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-31933814520827670472013-04-03T11:44:47.083-04:002013-04-03T11:44:47.083-04:00Ooh, more drug recommendations; thanks, SIF! I am ...Ooh, more drug recommendations; thanks, SIF! I am kind of torn: on the one hand, pads make me nervous for what I assume are obvious reasons, but I also am hesitant about MORE drugs (seriously, you should see my medicine cabinet - it's embarrassing). I wonder if I can take them as a temporary measure? More questions for my hard-to-reach-by-phone neuro... Ms. CrankyPantshttps://www.blogger.com/profile/13639705108258882767noreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-18500125540038274402013-04-03T11:37:34.598-04:002013-04-03T11:37:34.598-04:00Hi!
I was diagnosed with an 'active' bladd...Hi!<br />I was diagnosed with an 'active' bladder after complaining of dashing to the loo every five minutes. <br />I was prescribed 5mg of Vesicare (solifenacin succinate) every day and it's been brilliant. All back to normal. <br />XStumbling In Flatshttp://www.stumblinginflats.comnoreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-38681491700315811812013-04-02T13:37:21.311-04:002013-04-02T13:37:21.311-04:00Kim,
Clean ones are a wonderful thing...far too ...Kim, <br /><br />Clean ones are a wonderful thing...far too rare. And don't even GET me started on PortaPotties... <br /><br /><br />:(Ms. CrankyPantshttps://www.blogger.com/profile/13639705108258882767noreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-20995409966039111392013-04-02T13:36:30.368-04:002013-04-02T13:36:30.368-04:00Yep, good old McDonald's...saved many a road t...Yep, good old McDonald's...saved many a road trip!Ms. CrankyPantshttps://www.blogger.com/profile/13639705108258882767noreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-20662286219926943202013-04-02T11:35:23.112-04:002013-04-02T11:35:23.112-04:00I do the same thing with the need for bathrooms......I do the same thing with the need for bathrooms...I appreciate clean ones...and plan where I can stop at on a road tripKim@stuffcould....https://www.blogger.com/profile/03566751822418137457noreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-55921801780539599242013-04-02T09:40:48.511-04:002013-04-02T09:40:48.511-04:00I have always said a McDonald's restaurant is ...I have always said a McDonald's restaurant is America's corporate rest stop. They say "Over one billion served." I say, "Over two billion emptied."My Odd Sockhttp://myoddsock.comnoreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-68966731553938478982013-04-02T08:14:50.993-04:002013-04-02T08:14:50.993-04:00Ah, I knew there must be some kind of medication. ...Ah, I knew there must be some kind of medication. My neuro even mentioned one long, long ago (after a steroid infusion, when I was peeing ALL.THE.TIME).<br /><br />If I can get through to him (whole other issue), I will ask about it. Am a bit hesitant to add another drug to my growing list, but if it's only for my trip, I guess it's not so bad.<br /><br />Thanks!! Ms. CrankyPantshttps://www.blogger.com/profile/13639705108258882767noreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-7769760299002904472013-04-02T08:12:06.403-04:002013-04-02T08:12:06.403-04:00Karen,
Thanks for the "report from the fiel...Karen, <br /><br />Thanks for the "report from the field" -- I had no idea there were so many choices. Will investigate at once! <br /><br />Yes to the romancing in Italy!! :)Ms. CrankyPantshttps://www.blogger.com/profile/13639705108258882767noreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-14316659480601557862013-04-02T08:08:28.339-04:002013-04-02T08:08:28.339-04:00Thanks for the idea, Webster! I definitely hadn...Thanks for the idea, Webster! I definitely hadn't considered that before. (Sounds a little painful!?) <br /><br />Sleeping through the night: now THERE'S a novel concept! Ms. CrankyPantshttps://www.blogger.com/profile/13639705108258882767noreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-66597094043217422452013-04-02T02:52:14.259-04:002013-04-02T02:52:14.259-04:00Sigh. As a woman who knows where every public toi...Sigh. As a woman who knows where every public toilet is in town - the ok ones, the alright ones and the in times of desperation only ones, I hear you. And getting up at night is a given. Often more than once.<br /><br />Then.... (drum roll please) I was prescribed Ditropan (oxybutynin hydrochloride). Bliss. I can sometimes go hours without having to pee. Which makes life much simpler. Though mind you, I would take the bladder incontinence products along as back-up.Elephant's Childhttps://www.blogger.com/profile/06650565833097914052noreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-24696044638243990932013-04-02T00:41:40.222-04:002013-04-02T00:41:40.222-04:00I just wear "bladder incontinence" produ...I just wear "bladder incontinence" products, and let it flow...so to speak, if I can't make it to the loo. TENA and Poise are good products and come in a variety of "styles", pads, or full undies, and a variety of "protection", light, medium, heavy or...Peeing my pants all the darn time" I use light pads for daily use, heavy for a shopping trip, and the heavy duty full undies for long trips. The foley cath is a bit too drastic for me at this point. It's a real romance killer, and you want to be romancing in Italy!!Karenhttps://www.blogger.com/profile/07094543520943386032noreply@blogger.comtag:blogger.com,1999:blog-1976128754487941498.post-63786631052136817172013-04-02T00:23:18.829-04:002013-04-02T00:23:18.829-04:00OK, you asked.
I would recommend having a foley c...OK, you asked.<br /><br />I would recommend having a foley catheter inserted before you leave. Take a week or so to get used to it (even though there is really nothing to that - it's just emotional). Then use a Belly Bag (google it) instead of a leg bag, so you can wear shorts and/or skirts. Your worries are OVER, and you can drink all you want. Also, take a night bag for, nights - they hold twice as much. You will pee at night more than you drank during the day. Added bonus - you will sleep through the night. Do talk with your primary care doctor or urologist about this option. It may just your "Get out of the bathroom free card."Websterhttps://www.blogger.com/profile/13518858062969978457noreply@blogger.com